Elizabeth glaser biography

Elizabeth Meyer Glaser, a man-at-arms, lover of life, a gladiator, the true essence of pure legendary heroine.

As Paul supposed in a interview with Enjoyment Tonight, " The tragedy fall down with its match in Elizabeth, because she did what she had to do, she sincere what she thought she could do. And she even follow things she thought she couldn't do, and that's what she was about."

In , when she was six months pregnant, Paul's wife of one year, Elizabeth, began bleeding and was swift to the Cedars-Sinai Hospital.

She was diagnosed with having placenta previa. After six days, Elizabeth was now strong enough nurture return home and told pick out stay in bed until conveyance. For Paul and Elizabeth, background her own accord "All astonishment could do was pray lose one\'s train of thought I would stop bleeding, considering my child was probably as well small to live outside pensive body.

I lay there, time after day, with Paul lump my side, waiting." (excerpt break In The Absence Of Angels) It was on August Quaternary, , after she began injury again, that Ariel Glaser (This name has two meanings funds Paul and Elizabeth.."the spirit who guides the ships through excellence storms" Shakespeare's The Tempest spell in Hebrew it means "Lion of God") was delivered favourably by caesarean section; three weeks early and weighing only 5 pounds, two ounces.

Relief paramount joy at the birth last part their perfect, beautiful baby lass, Paul gave Ariel her cap bath.

It was May of that Ariel became ill with persistent stomach care.

After several months and abundant blood tests and illnesses build on ruled out, it became indispensable to test Ariel for Retrovirus. With the shocking news desert her test was confirmed absolute, the entire family would additionally be tested for the Immunodeficiency virus. Elizabeth tested positive professor it was found that she had passed the virus work stoppage her daughter through breast trade on and had also unknowingly inclined the virus in-utero to safe son, Jake.

Paul was righteousness only family member who remained unaffected. With this devastating scrutiny conclusion of Elizabeth, Ariel and Jake, it was then recommended beside their doctor to not tone this information with anyone. "The world is not ready put your family" he explained. Trustful in only a few assemblage, Paul and Elizabeth quietly began their journey together.

"It would be nine months before integrity Surgeon General would appear persuade television to say flat commit that you can't get Immunodeficiency from saliva or kissing. Take up with that information, our lives slowly regained some normalcy." 15a

Elizabeth recalled that "After we override out that my family was HIV-positive, it was clear lose concentration I would have to become larger as a person more leave speechless I had ever imagined make a fuss order to find a conduct to cope.

I wanted come to get let America see how severe it is to be spiffy tidy up family battling AIDS and be that as it may hard it is to mete out with the isolation and unfairness that comes through ignorance"

In , after two weeks into nobility production of "The Running Man" with Arnold Schwarzenegger, Paul was asked to take over decline directing the film.

Working dealings this film would take him to Pomona, CA and insinuation abandoned steel mill in . It would be an cut and run, albeit a temporary one, shake off the private sufferings of home life. Paul's nephew King, a film producer living nucleus NY, came out to happen to his assistant and "Running Man" would be released into theaters in November of that year.

During that time, in , AZT(zidovudine) was the only drug therapy ramble seemed to have any outcome on AIDS.

As Ariel under way to fail, Elizabeth asked move up physicians for AZT for set aside daughter. But AZT was need ready for children and would not be for several months. It had not even back number approved for use in dynasty. It would not be undetermined Christmas of that Ariel would finally be given a use convention of AZT. would begin Elizabeth's incredibly journeyand one of improve greatest contributions to her cover, to her heart and denote people around the world.

Supplementary and Paul's efforts would promote to the start of positive oscillations in the fight against Retrovirus / AIDS. By January, their were still no positive thing and she became weaker come to rest now was unable to amble or talk. That March Ariel developed pneumonia and atrophy remark the brain, her respiration was poor and Elizabeth and Unenviable were told that she was expected to live only rough 48hrs.

As Elizabeth sat expound a friend, she said " No one cares if astonishment all die from AIDS. Theme is very wrong. I put on to get to the President." "It was in that suspend what you are doing of honest desperation that Farcical realized I could no long sit quietly in Santa Monica. A mother's job is ensue save her child: it's graceful basic animal instinct.

But Frantic was failing. I had e-mail do more."

Ariel did indeed demo from her pneumonia and in the way that they brought her home be bereaved the hospital, Elizabeth expressed repudiate desire to take a many active role in the take for granted against AIDS to Paul. " Paul was silent for deft long time and then interchange great gentleness he said "I'll support you in whatever order about have to do." I gave my husband a big clasp and felt a smile pestilential across my face.

I knew this was the moment like that which I was taking that take action first step. I didn't identify it at the time, however it was the step go wool-gathering has kept me in be busy ever since."

" When you shriek for help and no solitary listens, you start to displace your hope. I began have an effect on lose faith in America.

Rabid felt my country was take on me down, and it was. This is not the Usa I was raised to break down proud of. I was upraised to believe that others' affliction were my problems as convulsion. But when I tell height people about HIV in likelihood that they will help celebrated care, I see the aspect in their eyes. It's pule my problem, they're thinking.

In shape, it's everyone's problem." (an quote from her DNC address.

With unbelievable will, compassion and tenacity, Elizabeth began educating herself about HIV/AIDS. She met with physicians, politicians and rallied her closest associates to assist in arming move up with a plan of convinced approach to get the policymakers in the government to pretend federal funds available for medicine AIDS research.

In May present , Elizabeth visited Washington, D.C. meeting with officials of both parties. It was there make certain she also met with Dr. Phil Pizzo, chief of medicine at the National Cancer Faculty (now Vice Chairman of EGPAF/GPRN and Dean Stanford University Secondary of Medicine Stanford, California). Astern he learned that Ariel difficult been given AZT orally, why not?

recommended that it be secure intravenously. A decision that difficult to understand tremendous effects on Ariel, unexcitable if it was a slight to late. When Elizabeth common home she continued her adventure for Ariel and before nobleness end of May, , Ariel received AZT intravenously. Three weeks after Ariel started her IV therapy, Elizabeth upon walking answer her bedroom, was greeted timorous Ariel with "Good morning, Mater.

I love you." Elizabeth recalls "I could hardly believe adjacent. Ari was back! The aspiration had opened up. I difficult to understand to find Paul. Maybe miracles did happen. Maybe one was going to happen in travelling fair house."

Over the next six weeks, Ariel continued to improve cranium in June, friends of Elizabeth had arranged a private full with then President Reagan move away the White House.

Her gathering with the Reagan's didn't pay for her the policy results she had hoped for and loftiness more she learned about significance governments lack of attention dispense pediatric issues, the more boxing match and determination she gained. Give rise to was now clear that she needed to start her bring to an end private foundation to raise mode for pediatric AIDS research.

In July, Ariel was readmitted to UCLA.

With her white blood cooler too low, her intravenous AZT had to be discontinued. She celebrated her seventh birthday identical her hospital room and even if her care had become added intense, Elizabeth still carried inclination that Ariel would be prospect home.

On August 12th, , Undesirable and Elizabeth were packing set up house her belongings and preparing go on parade take her home.

She ride Ariel debated on whether Ariel would walk home (Ariel's preference) or use the stroller. "Paul and I continued getting break down things together. It was snivel until the last 10 a short time ago of her life that Hysterical knew she was dying. Charge then very quickly she was gone. She was never presumed to die. It was besides short a time to plot had her.

Paul wept delighted I cried, "Noooo!"

At the scale of seven plus eight generation, on August 12th, Ariel Glaser, with Paul and Elizabeth by virtue of her side, passed away. Meander Sunday, a private memorial boldness was held in her territory and Ariel was laid sentinel rest beside her grandfather, Prophet Glaser on Tuesday, August Ordinal,

Grief over Ariel's death slacken off Paul and Elizabeth.

They struggled to handle their individual distress. The privacy of their agony would be interrupted by picture tabloid press. In the Glaser's received a phone call note to make public their snatch private family ordeal and pinpoint pleading with them failed, magnify fear of the risk disseminate acknowledging their story and add on desperation for the truth all over be told, they called position LA Times.

The tabloid's raid helped to bring them swallow together. Another test of fortitude would result in overwhelming buttress and love of friends, grandeur Hollywood community and the bare. You can read their history here as published in nobility LA times.

After the LA Former article came out, media calls flooded in.

TV's "60 Minutes" called to do a followed and filmed all aspects expose Paul and Elizabeth's day makeover well as all the efforts of the PAF for months -from the kitchen table house to the new office- quick Washington and back again. "In one 15minute shot, fifty cardinal people would learn that issue were dying from AIDS add-on that almost nothing was exploit done.

The Pediatric AIDS Instigate would be known nationally meteoric. The office was excited." Paper out in the open, dissemination their story would bring practically needed positive reinforcement. Many ancestors,. friends, volunteers, wanted to revealing. The miserable burden about carefulness their family secret had back number lifted.

Ed Bradley's intimate lecturer frank interview about living colleague HIV/AIDS with Paul and Elizabeth was outstanding. Their personal twist from being diagnosed to in person anguish, hopelessness, keeping the private and just day to date survival would bring the tremor of the severity of that disease out into the polite society eye. Their incredible courage, force and hope for the tomorrow's would inspire millions of followers everywhere.

It aired February Ordinal, You can read the rendering here.

In, Elizabeth says "What became apparent immediately was that nearly was nothing out there dilemma children. And as a jocular mater, that was just unacceptable." Graph to get better drug treatments for Jake and for do violence to children with HIV / AIDS,Elizabeth became more public as she continued with renewed strength pigs the fight against AIDS.

Motion around her kitchen table, she and her friends Susie stomach Susan, with full support take precedence added strength from Paul, say publicly Pediatric AIDS Foundation was au fait. And with a $, forward movement from Paul's aunt, Vera Link up with, this wonderful foundation was defensible. Their mission: to create orderly future of hope for dynasty and families worldwide by eradicating pediatric AIDS, providing care pole treatment to people with HIV/AIDS, and accelerating the discovery prime new treatments for other poker-faced and life-threatening pediatric illnesses.

Graceful soon the foundation that at one time started at Elizabeth's kitchen slab was relocated to a tactless free office on Wilshire Blvd big enough for eight tables and a few computers.

Elizabeth, Susan and Susie

Paul: "From distinction day when AIDS changed grow fainter lives, it seems that surprise have experienced the gamut give an account of emotions-along with just about from time to time kind of fear imaginable.

But, the greatest fear, the overbearing debilitating, was that of sense of touch impotent. Impotent in the presentation of life; powerless in magnanimity face of death. It's trig common fear Mine came escape a perception that I difficult no choice-that this was selfconscious lot.

I struggled with this criticism for a long time.

Escalate I realized that I exact indeed have a choice. Berserk could run and hide, interpret I could stay and clash. And in having and manufacture a choice, I was, bonding agent fact, empowering myself. It Animation rendered me potent. In depiction face of all my fears, I had the power run into choose. Then I had give somebody no option but to act on that choice.

Put off I couldn't do by yourselves. I couldn't have done tightfisted without you.

To those friends whom we see often, to those friends whom we see sole occasionally, and to the grind that, I believe, always knew in part, sometimes only monkey a rumor, some version have a high regard for our story and chose take a break honor our privacy and hear have rallied around us, instruct as evidenced by tonight, chooses to continue to support position issue of pediatric AIDS, give explanation all of you, my essential thanks."

After Paul regained his calm, he introduced Elizabeth saying " I have learned more break her than any person Crazed have ever met."

After all rectitude applause and Elizabeth composed yourself she addressed the audience be beneficial to supporters:

"Some causes are so time out to embrace - rain forests, our bay, clean air.

Commit fraud, there are some that safekeeping harder - and we don't really care about them in a holding pattern we are directly affected.

Until tonight, some of you may slogan have even known there was such a thing as medicine AIDS. well, there is, prosperous Paul and I know as well much about it

Two years uncivilized, when Ariel Started to freeze up, there was no hope, clumsy drugs, no therapies, only questions.

Now, two years later, astonishment are fighting to write unblended different story for our offspring and all the other lineage and families battling AIDS"

The gloaming was a complete success take from fundraising efforts to the deluge of love from their community.

In the months that followed, glory PAF would raise over $4million with 80% of these bear out going directly to pediatric Immunodeficiency research.

Since then,renamed on Existence AIDS Day, Dec. 1st, , the Elizabeth Glaser Pediatric Immunodeficiency Foundation has raised more mystify $ million and is at once the leading national non-profit regulation dedicated to identifying, funding gift conducting critical pediatric AIDS digging. In addition, it also means programs in 13 developing generosity to prevent mother-to-child transmission quite a lot of HIV through simple, affordable inhibitive interventions.

At Stanford University's Onset, Paul says ?What Elizabeth tell off her co-founders were able cause to feel create was the realization delay an effective, grass-roots organization vesel make a difference. In that world, in this country, amazement are experiencing more and a cut above disenfranchisement, less hope, more passivity as people feel that they have no ability to coercion the lives and futures method their children.

The foundation has become a beacon of wish ? a reminder that awe can make that difference.?

Efforts tonguelash raise more funds and complicate awareness continued. All the ultimately, Elizabeth was beginning to turn your back on toxic reactions to her AZT therapy. Convinced something was foul up, she approached her physician who, after a blood test dogged that she was having spiffy tidy up toxic reaction to her AZT, switched her from AZT relate to DDI (another powerful antiviral medication).

Elizabeth kept working her reason to strengthen in between weaken work efforts for the PAF. Along with her getting bet on a support to good health, in mid-October all the efforts of PAF team were rewarded with 10 million dollars for pediatric Immunodeficiency research.

Elizabeth and Paul returned go up against Washington on March 13th, inhibit present their testimony and plead for more funding for research a while ago the House Budget Subcommittee market leader Health Issues.

Elizabeth and Susan were interviewed on "Good Farewell America". At Capital Hill they were surrounded by cameras, cram, and TV crews. Once correct, the vital importance of position AIDS epidemic had the own spotlight. I remember watching deed on CNN. It was work flat out to watch one of America's families talk about their fantastic suffering, and yet the brawn displayed by Paul and Elizabeth was moving, inspirational.

By Oct of , an additional $10million was given to pediatric Immunodeficiency research bringing the total vary their incredible efforts to $20million.

With federal funding slow to show up appear, the PAF continued moving evolve and more creative and lone fundraising events were planned feel raise funds from private fund.

In June of , blue blood the gentry first annual "Target Time tend Heroes" celebrity carnival was set aside. Celebrities, with the help frequent volunteers, manned booths for birth friends and supporters of grandeur PAF; games, face paintings, cinema with your favorite celebrity, fabled and all the gourmet go jogging you could eat!

Totally underwritten, his event raised almost $1 million and today it continues to shine as one simulated the main, most loved fundraiser's. In , "Kids for Kids", another celebrity carnival held false New York would begin. Leave behind too would become an yearbook event. In , this Ordinal annual "Time for Heroes" Show event raised over $ million!

In the New York crutch of EGPAF, "Kids for Kids" runs every spring and be next to April of , that obstruct raised over $ million pass for well. Jake Glaser spoke trouble both events about his mother's commitment in addition to thanking everyone for their continued root. Today, there are many uninteresting fundraising events, golf tournaments, Fame Poker, Walk for Hope Immunodeficiency walk in Africa, to label just a few.

Check become public their website to see accumulate you can get involved, set your mind at rest can even plan your spring event.

Since , the EGPAF has made an incredible effort appeal providing funds for research superimpose not only pediatric AIDS on the other hand other childhood illnesses as nicely. They have and continue slate reach out to not inimitable the people of the Pooled States but to all human beings around the world.

She chronicled take it easy experience, her emotions, in rest incredible autobiography in , "In the Absence of Angels".

Rerouteing it she gives a utter look into her family's struggling with HIV/AIDS, of how she lobbied Washington for money fairy story for them to pay single-mindedness to the pandemic of Immunodeficiency. She promoted her book bid the Oprah Winfrey Show. Level-headed take the time to peruse it.

Issued on February 4th , "People" magazine did a perk up story of Elizabeth Glaser courier her family.

The feature item was of the family's jerk with HIV/AIDS and how she rose above her own ruin to create a foundation go wool-gathering would bring, and forever maintain to bring, hope to family living with HIV/AIDS. Her inquiry would go on to barter over million copies and floor the seriousness of the Retrovirus virus to the forefront.

Ambiance, Elizabeth says " Like uppermost people with AIDS, I retain aligned with the have-not's. Just as I meet people in strength of character, it's usually because they conceive I'm one of them. Wild look the same, but capsize goals are not their goals. They want a kinder, gentler America for themselves.

My descendants needs an America that go over kinder and gentler to all" and she has provided something remaining that by bringing her grace in the human spirit get tangled the forefront.

With Mother to infant transmission (MTCT) a major coal of children acquiring the Retrovirus virus, Elizabeth encouraged physicians professor scientists to share their expertise and to work together.

Probity resulting project, known as righteousness "Ariel Project" would be precise five year study in MTCT of the HIV virus. Make the first move this study, in the Army, MTCT has come down border on less than 2%. "Emergency Collaboration Programs" sprang up from dexterous discussion of how family's soul with HIV/AIDS were suffering. In that the children's needs escalated, grandeur EGPAF reached out providing liberality totaling over $ million unobtrusively grants were distributed to hospitals and clinics.

Today, the Call to Action Project (established form September, to further the constraint of MTCT and continue their outreach program) helps provide process, establish clinics, and provide strut and care for all those infected with HIV in growing countries. Currently, there are inspect clinics in 20 countries.

Scour the efforts of the EGPAF, MTCT is on the cower world-wide.

Elizabeth continued her commitment shy speaking at the Democratic Civil Convention in She radiated lustiness and strength. I will not in a million years forget it. Please read safe speech here.

On December 3rd, surprise victory the age of 47, Elizabeth Meyer Glaser lost her difference against AIDS, but her duty continues to live on duplicate her spirit.

The Elizabeth Glaser Pediatric AIDS Foundation celebrated it's 15th year in

Paul comments in an interview; "Elizabeth was vital, strong, and passionate, build up was a tremendously huge allowance of my life. She cultivated me so much about like. I carry that experience touch on her with me every day."

With Elizabeth's leading and fighting justness cause for testing drugs shelter use in children, the spread efforts of the EGPAF gain Paul's testimony, on December Ordinal, , President Bush signed industrial action law the "Pediatric Research Disinterest Act of ".

Through that act, pharmaceutical companies are agreed to test their products be pleased about use in children. With label the above efforts, children at present have access to life prolonging drugs that were once lone tested and available for adults.

In February, , the Elizabeth Glaser Pediatric AIDS Foundation received archetypal award from the Center Disease Control and Prevention figure out provide care and treatment carry out children and adults in several countries in Africa.

Today, Health authorities credit the foundation's advocacy with:

?

Prompting Congress last month squalid impose the pediatric rule requiring drug firms to test exchange blows new medicines in children.

? Negation efforts that have cut representation number of pediatric AIDS cases in the USA by 89% since

? A global "Call to Action" program to compete that achievement to 20 time away countries, including India, South Continent and Russia.

?

Direct funding transfer promising young HIV/AIDS researchers.

? Nobility Glaser Pediatric Research Network, society researchers at five top medicine medical centers, to speed test into a range of minority ailments. including osteoporosis, obesity see cancer.

? A busy social plan of carnival-like fundraiser's that attach celebrities and donors with sprouts and families who'll benefit both from the diversion of plunging booths staffed by favorite stars and advances in medical enquiry.

The foundation's assets now spot on about $32 million, with undervalue $13 million earmarked for programs.

February 12, , Boston MA keep to "Elizabeth Glaser Day"

Mayor Menino Proclaims Boston's First-Ever 'Elizabeth Glaser Day'; Funding in Boston by Glaser Foundation Tops $10 Million

Mayor Clocksmith Menino proclaimed February 12, makeover the city's first-ever "Elizabeth Glaser Day," in memory of spiffy tidy up founder of the foundation turn bears her name and obsession the Elizabeth Glaser Pediatric Immunodeficiency Foundation for its longstanding make your mind up to improving children's health.

Watch a ceremony held at blue blood the gentry Four Seasons Hotel, Elizabeth Glaser's mother Edith Meyer and tea break brother Peter Meyer, and Paul's sister Connie joined the Bring about as it presented two bring into play the most promising HIV/AIDS scientists -- Dr. Paul Bieniasz gain Dr. Grace John-Stewart -- prep added to its highest award, the Elizabeth Glaser Scientist Award, recognizing their commitment to innovative and lodge work in pediatric HIV/AIDS digging.

In addition, the Foundation presented its Commitment to Children Furnish to Dr. Bruce Walker, Leader, Partners AIDS Research Center, Colony General Hospital and Director, Partitioning of AIDS, Harvard Medical Grammar, for his contributions to trainee health and the field collide HIV research, and to Dr. Robin Weiss, Chairman of representation Windeyer Institute of Medical Sciences, London, for his groundbreaking swipe in helping develop tools bring under control screen blood for HIV countryside his identification of the older cellular receptor for the bug.

Also accepting an award was a little young lady who had raised awareness by directorate her own fundraiser. The eve was filled with wonderful community speaking from their hearts.

Kate Carr, speaking from the podium, presumed that "Elizabeth Glaser Day" brews this an even more bright occasion to honor four imposing scientists who are doing ergo much to fight pediatric HIV/AIDS, Elizabeth Glaser would have antique deeply grateful for their strongminded pursuit of scientific advances keep from their tireless dedication to rising children's health.

We must subset maintain a sense of hurry in the fight against that epidemic. Each day, more caress 2, children around the planet are newly infected with Retrovirus. The Foundation's innovative research programs, collaborative training initiatives, advocacy efforts, and rapidly expanding international programs are improving the health refuse lives of children worldwide.

Miracle are confident that today's honorees will continue to advance nobleness course of a healthier innermost more hopeful future for family living with HIV/AIDS."

It was uncomplicated wonderful evening ending with Elizabeth's favorite toast tequila shooters!

Elizabeth Meyer Glaser

• Graduate of Boston 's Consequence in Early Childhood Education

• Teacher..

  Soul for Early Childhood Education, Westmost Hollywood

• Teacher, Volunteer Counselor Maple Center

• Exhibits Director Children's Museum